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Owynn Spahr 9 September 2008 - 19 November 2009 Kassidie Watts 1 July 2009 - 20 October 2009 |
| The Brendan B. McGinnis Congenital CMV Foundation is a non-profit 501 (c) (3) dedicated to raising public awareness about congenital CMV, to raise donations to support research for a vaccine for CMV, and to affect change in the medical community so that physicians will begin to test women for CMV prior to pregnancy. Ultimately, our mission is to save babies yet to be born from suffering the often devastating consequences of congenital CMV by eradicating this common but potentially life-altering virus. |
| Brendan B. McGinnis Congenital CMV Foundation |
| If you are considering having a baby, you need to know about congenital cytomegalovirus (CMV) infection ! |
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| In Loving Memory of... |
© Copyright 2010. www.cmvfoundation.org Federal Tax ID #: 26-0886244
| Public Awareness and Vaccine Research Support. Working Together to Eradicate Congenital CMV Disease. Member of the External Partner Group, in conjunction with the National Center on Birth Defects and Developmental Disabilities (NCBDDD) and the Centers for Disease Control and Prevention (CDC) |
Kassidie was born in Wales with symptomatic
congenital CMV. She was the first baby in Wales
to be treated with ganciclovir. Kassidie spent
the majority of her short 16 weeks of life in
hospitals, but while she was home she was
happy, very lively and was a tough little girl
enduring all the treatments and testings.
Regarding Kassidie's passing, her mum Sammie
said, "I remember a doctor coming in and saying
that they tried everything but her body couldn't
fight any more and that it was the CMV that had
killed her. That day will haunt me for the rest of
my life. I was taken into a room to be with
Kassidie and stayed the until I was dragged
away by my family. I carried my baby protecting
her from the outside world until she was ready
to enter it, but the outside world was killing my
baby. I carried her, I felt her every kick and
movement , I heard her heartbeats and saw her
on the screens, but I no longer have my baby
with me. I cannot explain how that feels and
unless someone has lost a child no one will
know how I feel inside or out. I carry on for my
other children, but I cry myself to sleep every
night."
congenital CMV. She was the first baby in Wales
to be treated with ganciclovir. Kassidie spent
the majority of her short 16 weeks of life in
hospitals, but while she was home she was
happy, very lively and was a tough little girl
enduring all the treatments and testings.
Regarding Kassidie's passing, her mum Sammie
said, "I remember a doctor coming in and saying
that they tried everything but her body couldn't
fight any more and that it was the CMV that had
killed her. That day will haunt me for the rest of
my life. I was taken into a room to be with
Kassidie and stayed the until I was dragged
away by my family. I carried my baby protecting
her from the outside world until she was ready
to enter it, but the outside world was killing my
baby. I carried her, I felt her every kick and
movement , I heard her heartbeats and saw her
on the screens, but I no longer have my baby
with me. I cannot explain how that feels and
unless someone has lost a child no one will
know how I feel inside or out. I carry on for my
other children, but I cry myself to sleep every
night."
Emily, Owie's mom, says of her son "He was
beautiful in every way. He opened not only
me and my husband's eyes and those of his
big sissy, but a lot of other people - many
who never got the honor of meeting him. He
did more without ever walking or talking than
I will ever do. My little guy never let the pain
get him down or show us he was in pain. He
always greeted us with smiles. My daughter
Devon says "Momma, remember my Owie's
goofy smile?" He was everybody's Owie! He
had a way of making you feel like you are the
most important person in the world just by
smiling at you."
beautiful in every way. He opened not only
me and my husband's eyes and those of his
big sissy, but a lot of other people - many
who never got the honor of meeting him. He
did more without ever walking or talking than
I will ever do. My little guy never let the pain
get him down or show us he was in pain. He
always greeted us with smiles. My daughter
Devon says "Momma, remember my Owie's
goofy smile?" He was everybody's Owie! He
had a way of making you feel like you are the
most important person in the world just by
smiling at you."
