© Copyright 2007 - 2012 www.cmvfoundation.org Federal Tax ID #: 26-0886244
| Public Awareness and Vaccine Research Support. Working Together to Eradicate Congenital CMV Disease. Member of the External Partner Group, in conjunction with the National Center on Birth Defects and Developmental Disabilities (NCBDDD) and the Centers for Disease Control and Prevention (CDC) |
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| The Brendan B. McGinnis Congenital CMV Foundation is a non-profit 501 (c) (3) dedicated to The Brendan B. McGinnis Congenital CMV Foundation is a non-profit 501 (c) (3) dedicated to for CMV, and to affect change in the medical community so that physicians will begin to test women raising public awareness about congenital CMV, to raise donations to support research for a vaccine for CMV prior to pregnancy. Ultimately, our mission is to save babies yet to be born from suffering the often devastating consequences of congenital CMV by eradicating this common but potentially life-altering virus. |
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| In Loving Memory of... |
Kassidie
1 July 2009 - 20 October 2009
1 July 2009 - 20 October 2009
| Kassidie was born in Wales with symptomatic congenital CMV. She was the first baby in Wales to be treated with ganciclovir. Kassidie spent the majority of her short 16 weeks of life in hospitals, but while she was home she was happy, very lively and was a tough little girl enduring all the treatments and testings. Regarding Kassidie's passing, her mum Sammie said, "I remember a doctor coming in and saying that they tried everything but her body couldn't fight any more and that it was the CMV that had killed her. That day will haunt me for the rest of my life. I was taken into a room to be with Kassidie and stayed the until I was dragged away by my family. I carried my baby protecting her from the outside world until she was ready to enter it, but the outside world was killing my baby. I carried her, I felt her every kick and movement , I heard her heartbeats and saw her on the screens, but I no longer have my baby with me. I cannot explain how that feels and unless someone has lost a child no one will know how I feel inside or out. I carry on for my other children, but I cry myself to sleep every night." Submitted by her mom, Sammie |
