Home

Paragraph Title Here (Our Interests)

You might use this space to share more
information about your group's focus and why it
attracted your members, or to outline your
day-to-day activity. How often and where do you
meet? How do you stay current on developments
related to your interests? What plans do you have
for the future?

Paragraph Title Here (Highlights)

Here you can tell your site visitors about your
successes as an organization. Have you contributed
to local, state, or national community events? Have
your members earned accolades or represented your
group at recent conferences? You might also
discuss notable trips, meetings, or other
developments here.

8.30.04

9.05.04

9.15.04

10.02.04

10.30.04

You can use this space to
briefly describe a recent
event or group meeting.

RELATED LINKS

Center for Disease Control (CDC): www.cdc.gov/cmv

Pregnant women are being asked to contribute to the National CMV (Cytomegalovirus) Registry and specimen
repository. This is for women who are proven or suspected of having a CMV infection during pregnancy.
A Registry is a computer data base (file) which will contain the woman's medical history and the medical
history of her baby as it relates to CMV infection. The Registry will also contain the medical history of many
women in the United States who acquired a CMV infection during pregnancy. Women are asked to provide
certain specimens for storage. These specimens may include a sample of blood or urine, amniotic fluid
if it is obtained, placenta or a biopsy of the placenta, or blood from the umbilical cord.
Other specimens may include your a baby's urine.

The purpose of the Registry and specimen repository is to research the causes, diagnosis, and
treatment of congenital CMV infections. The Registry is necessary because no single doctor, hospital,
or medical school evaluates more than one or two pregnant women per year with this infection.
Thus, research into this disease is hampered by lack of sufficient patient information and specimens.
www.cmvregistry.org or click on the icon above to go to their website

National Congenital CMV Disease Registry: The National CMV Registry is an online registry sponsored by
Baylor College of Medicine and Texas Children’s Hospital for parents of children with congenital CMV. This is a
great sight to get connected with parents across America as well as around the world who are facing the
challenges presented by having a child with CMV.

www.bcm.tmc.edu/pedi/infect/cmv/

Dr. Mark Schleiss research information:

http://www.med.umn.edu/peds/id/faculty/schleissmark/home.html

VIDEO'S TO VIEW!!
Watch. Share. Help raise public awareness!

To view all of our videos and our PSA (public service announcement)
Please visit our Foundation's YouTube channel by clicking on the icon below:

We are also on Facebook!

The Brendan B. McGinnis Congenital CMV Foundation is a non-profit 501 (c) (3) dedicated
to raising public awareness about congenital CMV, to raise donations to support research
for a vaccine for CMV, and to affect change in the medical community so that physicians
will begin to test women for CMV prior to pregnancy. Ultimately, our mission is to save
babies yet to be born from suffering the often devastating consequences of congenital
CMV by eradicating this common but potentially life-altering virus.

Brendan B. McGinnis
Congenital CMV Foundation

If you are considering having a baby,
you need to know about congenital
cytomegalovirus (CMV) infection !

Public Awareness and Vaccine Research Support. Working Together to Eradicate Congenital CMV Disease.

Member of the External Partner Group, in conjunction with the National Center on Birth Defects and
Developmental Disabilities (NCBDDD) and the Centers for Disease Control and Prevention (CDC)

Related Links and Videos

Brendan B. McGinnis Congenital CMV Foundation |