Brendan B. McGinnis Congenital CMV Foundation main page

Public Awareness and Vaccine Research Support. Working Together to Eradicate Congenital CMV Disease.
Member of the External Partner Group, in conjunction with the National Center on Birth Defects and Developmental
Disabilities (NCBDDD) and the Centers for Disease Control and Prevention (CDC)

Brendan B. McGinnis Congenital CMV Foundation |

The Brendan B. McGinnis Congenital CMV Foundation is a non-profit 501 (c) (3) dedicated to
raising public awareness about congenital CMV, to raise donations to support research for a vaccine
for CMV, and to affect change in the medical community so that physicians will begin to test women
for CMV prior to pregnancy. Ultimately, our mission is to save babies yet to be born from suffering
the often devastating consequences of congenital CMV by eradicating this common but potentially
life-altering virus.

Centers for Disease Control and Prevention (CDC): www.cdc.gov/cmv

Pregnant women are being asked to contribute to the National CMV (Cytomegalovirus) Registry and
specimen repository. This is for women who are proven or suspected of having a CMV infection during
pregnancy. A Registry is a computer data base (file) which will contain the woman's medical history and the
medical history of her baby as it relates to CMV infection. The Registry will also contain the medical history of
many women in the United States who acquired a CMV infection during pregnancy. Women are asked to
provide certain specimens for storage. These specimens may include a sample of blood or urine, amniotic
fluid if it is obtained, placenta or a biopsy of the placenta, or blood from the umbilical cord.
Other specimens may include your a baby's urine.

The purpose of the Registry and specimen repository is to research the causes, diagnosis, and
treatment of congenital CMV infections. The Registry is necessary because no single doctor, hospital,
or medical school evaluates more than one or two pregnant women per year with this infection.
Thus, research into this disease is hampered by lack of sufficient patient information and specimens.
www.cmvregistry.org or click on the icon above to go to their website

National Congenital CMV Disease Registry: The National CMV Registry is an online registry sponsored by
Baylor College of Medicine and Texas Children’s Hospital for parents of children with congenital CMV. This is a
great sight to get connected with parents across America as well as around the world who are facing
the challenges presented by having a child with CMV.

www.bcm.tmc.edu/pedi/infect/cmv/

Dr. Mark Schleiss research information:

http://www.med.umn.edu/peds/id/faculty/schleissmark/home.html

CMV Webinar presented by Tracy McGinnis September 21, 2010

Buck Buck Foundation

2012 Congenital CMV W orkshop

JBLM EFMP newsletter featuring CMV

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